Matthias Zarb Szabo is an 18-year-old university student studying Electrical Engineering who started noticing blurring in his vision a few months ago. After several tests at Mater Dei, Matthias was diagnosed with LHON (Leber Hereditary Optic Neuropathy) disease.
LHON disease affects individuals in their 20s, and are at risk of losing their vision before the age of 40. Some individuals affected by this disease can first lose vision in one eye, and then the next, while others lose central vision, which will ultimately lead to blindness.
Matthias’ condition has progressed to the point where he cannot read nor write as this disease is affecting his central vision, making his studies that much more difficult.
Recently, Matthias was accepted to take part in a clinical trial in China, with the drug administration costing €850,000, which will be covered by the Chinese authorities. This has been achieved due to agreement signed between the National Alliance for the Support for Rare Diseases and the Chinese authorities with help of the Chinese Embassy in Malta.
Despite the medication for this trial being covered by the Chinese authorities, Matthias and his family are not covered when it comes to travel costs and accommodations.
How Can You Help?
Matthias and his family have started a fundraising campaign where you can place donations to help them cover the cost of travelling to China, purchasing the needed equipment, and any other medication and treatments needed.
The current amount raised is over €23,000, however the goal is to raise €250,000.
Furthermore, UESA is hosting a fundraising gala in order to raise more funds for this cause. The event will be held on February 25th at Giardini Lambrosa, Rabat, starting at 19:00. This event is open for everyone, including students and their parents, academics, and staff.
All of the proceeds from this event go directly to Matthias and his family.